14. Department of Health and Human Services · Notable
Finalize Trump-era disability rules on QALYs and assisted suicide
Printed page 496 14. Department of Health and Human Services
“Issue and finalize the Trump-era draft disability rights regulations concerning crisis standards of care and use of Quality of Life Adjusted Years (QALYs), and reissue and finalize a disability regulation (withdrawn by the Biden Administration) that prohibited discriminatory application of assisted suicide and denial of life-saving treatments for disabled newborns.”
What has happened
- Not started
Neither draft rule has been issued. HHS has no rulemaking at any stage on crisis standards of care, quality-adjusted life years, discriminatory application of assisted suicide, or denial of life-saving treatment to disabled newborns.
No action found yet. This entry is the starting point, not a finding.
Research log
What was searched, and what didn’t count as evidence
Research notes
- reginfo.gov, HHS agenda, all three stages: 184 active RINs, 32 long-term actions, 38 completed. OCR’s disability rulemakings are RIN 0945-AA27 and RIN 0945-AA30 (both web and mobile accessibility compliance dates under the May 2024 Section 504 rule) and long-term action RIN 0945-AA23 (section 504 for programs HHS conducts itself). None concerns QALYs, crisis standards or newborn care.
- Federal Register full text since 2025-01-20: “Quality of Life Adjusted” 0 documents; “crisis standards of care” 0 documents; “assisted suicide” six documents, all Medicare hospice and payment rules where the phrase appears in the statutory prohibition on hospice payment.
- The related disability rule story is recorded on #1395; nothing there is the QALY rule either.
- Action
- issue
- Object
- Trump-era disability rights regulations on crisis standards of care and QALYs
- ID
- 1399